#RememberDementiaInNovember
Day 8 (11/10) – #Savasana or #CorpsePose by @nicole_rn (Nicole)
! This helps to calm and relax the
mind and body; relieves stress; reduces headaches, fatigue, and insomnia; and
can help to lower blood pressure.
#DementiaAwareness – Resources for
Caregivers and Loved Ones
My
sponsor related items are: on my right wrist is a beautifully crafted
#hematite and #lapislazuli bracelet from @malas_by_lifeofayogiwithptsd
and #malanecklace then on my left wrist there is a lovely bracelet from
@dazzle.dream and in the background, I have some other items from our
fabulous list of sponsors. And as always I am on my @liforme #yogamat
(they are not a sponsor, but I adore this mat!!)
Thank
you all so much for participating in this very important yoga challenge
that helped to raise awareness and shine some light on dementia. I am
so grateful for the wonderful and positive response to this challenge.
Your stories and compassion have touched my heart. This was my second
challenge that I wanted to host…I had a wish list of causes I wanted to
bring awareness to, and as many of you know, the first one was about
ovarian cancer because I lost my momma only 4 days after she was
diagnosed. Dementia and Alzheimer’s also are a part of my life and my
friend’s and I felt an immediate need to get this one together. With
the help of my amazing co-hosts and great sponsors, it was a success!! I
have plans for a few more coming up in 2017, so be on the lookout for
those! Together, all of you participating, the hosts and the sponsors
made a difference!! That is a great feeling & one that I hope
everyone shares! My heart & thoughts are with each of you who have
been touched by dementia in anyway. Please remember that there are
others out there who care. Thank you again to everyone for helping to
spread awareness for dementia! I hope to see many of you in my next
challenge. With a heart full of gratitude and love, Namaste. LindaLee
I
will have all the information from this challenge/each day posted on my
blog page so you can refer to it whenever you need to. There will be
an IG post soon when everything is loaded.
AWARENESS
Day 8 – Resources for Caregivers
Luckily, in this age of technology, we have instant access via the internet to many resources and here is a list of ones that loved ones and caregivers may find helpful:
ADEAR (Alzheimer’s Disease Education and Referral): www.nia.nih.gov/alzheimers
This website has a downloadable book entitled Alzheimer’s Disease Unraveling the Mystery along with the ability to connect with an ADEAR expert by email or toll-free 800-438-4380 (Monday through Friday, 8:30 AM to 5:00 PM, Eastern Standard Time) (American Geriatrics Society, 2016, p. 402).
Alzheimer’s Association: www.alz.org
Resources are available in the following languages: Spanish, French, Japanese, Korean, Vietnamese, and Chinese (American Geriatrics Society, 2016, p. 402).
Alzheimer’s Caregiver Support Online: www.alzonline.net
This is site is sponsored by the University of Florida providing a wealth of information related to caregiving (American Geriatrics Society, 2016, p. 402).
Benefitscheckup.org: www.benefitscheckup.org
This program is for adults aged 55 years and older, provided by the National Council on Aging. Adults looking for help can go online to find “programs that may pay part or all of their cost for prescription drugs, healthcare, utilities, and other services” (American Geriatrics Society, 2016, p. 403).
Caregiver Action Network: http://caregiveraction.org
This was previously known as the National Family Caregivers Association (American Geriatrics Society, 2016, p. 403).
Family Caregiver Alliance: www.caregiver.org
There is an online support area, along with past and present webinars for caregivers to view
(American Geriatrics Society, 2016, p. 404).
Leeza’s Care Connection: www.leezacareconnection.org
This site was created by Leeza Gibbons, a well-known American television talk show host. Her mother had Alzheimer’s Disease and she wanted a place where people could access information and resources that weren’t readily available to her. There are even daily mantras to help people cope (American Geriatrics Society, 2016, p. 404).
The National Institutes of Health and the United States National Library of Medicine:
This website is very well maintained and updated and includes a host of health issues besides dementia and AD (American Geriatrics Society, 2016, p. 404).
Needymeds.com: www.needymeds.com
This site helps older Americans find resources to help pay for medications when they cannot afford them through scholarships and other programs. “Programs are available for all three widely used AD medications, including brand name Aricept, Exelon, and Reminyl” (American Geriatrics Society, 2016, pp. 404-405).
A book recommended is The 36 Hour Day: A Family Guide to Caring for People with Alzheimer’s Disease, related dementias, and Memory Loss by Nancy L. Mace, MA, and Peter V. Rabins, MD, MPH (published by Grand Central Life & Style). Originally published in 1981 and now in its fifth edition, this book remains the go-to-reference for lay people on the subject of memory loss (American Geriatrics Society, 2016, p. 405).
Some other useful websites for other countries are:
Alzheimer Society of Canada: http://www.alzheimer.ca/en
Toll-free phone number: 800-616-8816
Email: info@alzheimer.ca
Alzheimer’s Australia National: https://www.fightdementia.org.au/
National Dementia Helpline Toll-free phone number: 1800-100-500
Email: helpline.nat@alzheimers.org.au
Alzheimer’s Australia Dementia Research Foundation (AADRF): http://dementiaresearchfoundation.org.au/
Alzheimer’s Society UK: https://www.alzheimers.org.uk/
Helpline phone number: 0300 222 11 22
Alzheimer’s Association in the UK: http://www.alz.org/uk/dementia-alzheimers-uk.asp
Alzheimer’s Disease International (ADI): https://www.alz.co.uk/
Additional resources:
Tara Reed has a website: http://pivottohappy.com/
She also has a book, A Practical Guide to Dealing with a Dementia or Alzheimer’s Diagnosis in the Family. The book can be ordered through Amazon or you can purchase an eBook for $4.97 (USD)
(Price available at time of post).
Celia Koudele has a website: http://alzheimerscaregivers.info
She also has a book, The Little Book for Alzheimer’s Caregivers. The book can be ordered through her website and an eBook is also available for $3.99 (USD) (Price available at time of post).
Joshua Huggett researches Alzheimer’s and how it pertains to relationships and interactions, his eBook (eKindle price is $3.99 USD; Price available at time of post) can be found here: www.conqueringalzheimers.com.au
Obviously, this list of resources is not complete, but it is a great place to start if you are just looking to find more information, see what doctors are available in your area, find support groups, etc. My hope is that one day, very soon, there will be a cure for dementia and all the diseases associated with it. Until then, if you or a loved one is suspected or diagnosed with dementia…reach out to these organizations and get to connected to local resources. Being proactive about a situation can help you feel in control, so please keep this list available or remember that there are places available and willing to help.
References
American Geriatrics Society (AGS). (2016). Alzheimer's & dementia for dummies. Hoboken, NJ:
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